My Favourite Resources for Ankylosing Spondylitis

 

Recently Diagnosed with Ankylosing Spondylitis_

One of the podcasts I have been listening to as I begin my journey of understanding and addressing my Ankylosing Spondylitis disease and symptoms (I am in a bad flare at present) is the AS Natural Health Podcast with Michael Eisner which has been a wonderful resource.  There are 22 episodes available.  When I began suspecting I had AS back in December, I was in Kau’ai and I will always hold such good memories of listening to the first episode where he interviews Michael Smith (Episode 12) which I particularly enjoyed.  I’ve just finished listening to all of the episodes and I’m eagerly waiting for the next. It keeps me in such a good health / growth mindset and it is incredibly inspiring and illuminating to hear others’ journeys.  Put simply, it makes you feel a little less alone.  Statistically, AS afflicts hundreds of people in each city, but nobody I’ve spoken to has any idea what it is, or have heard of it.  And certainly no other ladies in their 30s with kids.  So, the value of Podcasts, among the many benefits, is feeling a bit less alone.  So thank you, Michael!  Keep doing what you are doing.

In my last post, I talked about how there’s two distinct paths you can go down in the days of diagnosis.

One is fear, fixed mindsets, believing that this problem is permanent, incurable and pervasive, and one that IS your life. I dabbled in a bit of this for a few days and it was a bit terrifying.  Oh, and my flare was terrible, I didn’t sleep, and I made terrible nutritional choices that I KNOW don’t work well with my body (those I knew pre-AS diagnosis.)

The other path is courage, growth mindsets, believing that you have been pain free and you will be again, that it is a very fluid and impermanent condition, that it is only a minor piece of your life.

I decided that the only acceptable path for me is the latter path, and I began to seek out people, podcasts, blogs, resources that would help me begin this journey of rich growth and deep personal healing.

The internet is so amazing, because there is something for every belief, and EVERY path you want to take in tackling this diagnosis and your symptoms.

From my listening to podcasts, reading blogs, watching videos, participating in facebook communities and connecting with others who have healed there are a few pieces I’m adding to my toolkit in the coming days, and it has been a really fun enlightening journey so far (if there’s one thing I really enjoy it is learning.)

So, here are some really helpful resources if you, like me, have been diagnosed with AS and have decided the latter path is the only one forward.

People:

Michael Eisner of the Ankylosing Spondylitis Natural Health Podcast interviews people who have successfully put AS into remission. This is what I started with, while I was on maternity leave, listening to each episode on walks with my baby (bonus:  hour walk and stretching!)

Peter Winslow and the Community of People at AS Victors.Com who share their successes.  There is a vast library of resources. I can’t wait to read Winslow’s Heal for Real book.  One thing at a time though.  It’s deep work. Don’t dive into all of these resources at once!   His blog is a wonderful resource as well.  Take a topic at a time.

Ralph Ruiz, Professional Life Coach and his Website & Facebook Group, Mindbody Healing.    His Youtube video series AS I see it is amazing and so deeply insightful.  Honestly, buy a journal and work through things with him.

I am currently (very slowly) working through John Sarno, M.D. Healing Back Pain:  The Mind-Body Connection.  This is kind of my main starting point of immersion.

This book is confirming so many things I was beginning to suspect and many describe this book as “blowing their world apart.”  Again, deep work and insights.  I personally am reading it on kindle because, well, small children, but wish I had a paper copy so I could write ALL over it.  I am highlighting so many things in this book and going to my “healing journal” with thoughts, insights and things to process.

Finally, the most important book and resource in this process?

Screen Shot 2018-08-08 at 8.56.58 PM.png

A blank one.  My mermaid journal. I bought this in Kau’ai in December when I decided I was ready to begin this healing journey.  The true work is the inner work, and by putting pen to paper, I am finding that I am able to access deeper thoughts, and feelings, and dive deeper into unconscious and subconscious beliefs, programming and repressed things which I am sure on many levels have contributed to this inflammation and pain.  As I work through things, have insights, collect knowledge or experience shifts in my observer / the lens I see through, I record them here.  With doodles, pictures, even long rambling free writing sessions to allow things to come through my hand and the ink flowing on the paper.  This, this is the single most important piece.  If you’ve never bought a journal or had the chance to bring this practice into your life, perhaps now is the time. 🙂  Pick a beautiful one that speaks to you, and find a nice pen.  You deserve it.

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